Saturday, January 09, 2010

Games with Death

There are wicked games the living play when death is making it's long stride into our worlds, especially if there is time to consider it's arrival. We play with our positioning: How close do we want or need to be? How will our closeness or lack of presence affect the rest of the living? When do we arrive and say our goodbyes, and will death beat us to the bedside? Do we position ourself to see the decline, to witness death diminish the one(s) we love? And we ask ourselves the questions: Would we rather have death come swiftly, sweep through and pickup the living in it's talons, carry it away? Or does the time left with the dying bring more peace and resolution?

I once had a Scientologist roommate who was reading through one of R.L. Hubbard's massive mahogany leather bound books. That book sat at her bedside and I feared, though was curious, about it's contents. So, one day while she was away I snuck into her room, grabbed the book and took it to my room. I opened the book to the middle and started reading. Hubbard was saying that pain is experienced because actions are too swift. He gave the example of a bullet piercing a body. He said, if the bullet were to be slowly pressed into the body over a long period of time that there wouldn't be pain. I thought about it, even agreed with it, and suddenly felt I was being sucked into Hubbard's prose and brainwashed, so I closed the book and returned it to her bedside, but I've never forgot his philosophy on pain.

I've been avoiding (I am prone to avoidance) the pain that I knew would come from writing about the death of my dear friend, Stephanie, who has fourth-stage squeamish cell carcinoma, cervical cancer which has spread throughout her body to her organs and her lymph nodes. In November, a few short weeks after she was diagnosed, her PET scans revealed that the cancer had fused the lymph nodes around her spine in a large mass that spanned her lower lumbar to the middle of her shoulders. It was when I knew that Stephanie's time would come quickly. It wasn't her doctor's optimistic one-year prognosis that solidified my knowing; in the past two years I've seen two of my people die after the cancer was found near, in, and around their spine. I'm no fool. I knew we didn't have anything close to a year to share our precious time with Stephanie. A few days ago, Stephanie was transferred into hospice care.

So here I am, tweaking cheap-flight websites, trying to make reservations, trying to find the least expensive way to be with and comfort my dying friend, to commune in comfort with her family, and her chosen family, and I'm frustrated and angry that this positioning, this financial game, these questions and obstacles and considerations or even an issue when someone's life whom I care so much about may be gone in an instant. It's a frustrating and ridiculous.

And although all of this emotion of this positioning is so overwhelming that I find myself jolted awake in the middle of the night thinking her time has just come and gone, and pacing in the kitchen with my coffee in the early morning hours wondering how and when I will visit, I am at peace with Stephanie's impending passing. I am at peace with the arrival of death when it eventually comes. It's the time between knowing it will come and it's actual arrival that makes crazy. I've seen it unfurl in in my own family. How they bowed forward in their chairs, and hunched towards the bed with the mouths turned down. And nobody has enough alone time, no one feels they have had their final say, everybody wants for something more. Motivations all seem so suspect.

Whose need is the most genuine, the most important? How do we determine these things as we look upon this intimate process? Whose needs do we put first when there are so many who want to be and are a part of the process, who are dazed by all that needs to be resolved in such little time? I try to leave my own needs out of this scenario, though I am not foolish enough to believe that I also don't have my motivations. Yes, my visit is partially about me and my relationship with Steph, but I also want to be there to lay hands on, and comfort the ones whose pain is more severe than my own. The community of people around Stephanie who love her as much as I do.

I'm coming to you soon, Ms. Stephanie. And although you may not have the appetite, I will be bringing with me your favorite caramels.
With love and with peace in your process.
With love and peace for the many people who love you so much.

4 comments:

radishly said...

this is another of the million times when i feel paralyzed to respond "appropriately" to the revelation of pain and humanity and love that touches me so deeply. you and stephanie are both in my heart right now, thank you for sharing.

Unknown said...

Thank you for reading and understanding the sentiment. It's a terribly difficult process for so many to come to terms with, myself included. And death is so dangerous to talk about openly. I'm just glad the conversation is not with myself, and that the others within this process are open to frank conversation. Difficult as it is.

cindy Gregg said...

Death cheats the living out of our loved ones. It takes them away leaving us empty for the person that has gone. It is all so unfair. And how can we possibly understand the reason someone has to go through this awful disease. I hate cancer and pray regularly for its cure. Sephanie is in my prayers as well on a regular basis and so are you Chelsi. Praying is the only thing I can do for either of you. I am here for you AND stephanie if she should decide she needs someone to pray with her, talk with her or guide her in her spirituality. I love you honey, hang in there.

Unknown said...

so true, so true...

how do we come to terms with something that most of us fear and want to believe is either far enough away that we don't want to invite it into our consciousness by dwelling on it, is creeping around the corner but maybe we still have time to outrun it, or is so near that it seems to be clinging to everything in our paths?

we don't want to say too little and have our loved ones thinking that we're indifferent but we don't want to say too much either because maybe they're just "not there yet". we watch them for signs of how to feel, how to react. we talk to other people in their community to try to make sense of it, to help it to sink in, and to try to figure out where to put it.

we wonder how much we should carry on with the rest of our lives; should i rearrange my own life to be there with them? if so, when? either way, is my decision for me or for them? do i get to judge how other people are handling this process? as you say, is that emotion sincere?

if we let it, death forces us to confront some really dark and scary shit. it asks us to make amends with past wounds and to try our best to just be here now with as much love as we can find. hopefully, if we're lucky, it's actually healing and in the midst of a whole lot of pain, we find some peace.

you're a good person, chelsia, and it's obvious that stephanie left this world loved by many...